Rare Disease Orgs
Who are You?
You are the executive director of a rare disease organization. You are building and operating a rare disease registry. You fund or do research to drive faster scientific and clinical progress towards therapies and diagnostics for patients.
Your Challenges
You're coordinating everything from enrolling patients, to keeping them engaged for multiple years, to gathering biospecimens and data, to advancing scientific research through to clinical trials.
It's a lot, but you know how to inspire people and manage an organization. However, your tools are limited: laptops with email, spreadsheets, and documents and analysis software that runs on a machine.
Historically, rare disease organizations have stitched together multiple spreadsheets or built manual workflows. The researchers you fund are each building software and computational infrastructure as most of their work now requires analyzing large amounts of multimodal data with scalable cloud compute. They are each spending your dollars on rebuilding computational infrastructure.
It's a lot, but you know how to inspire people and manage an organization. However, your tools are limited: laptops with email, spreadsheets, and documents and analysis software that runs on a machine.
Historically, rare disease organizations have stitched together multiple spreadsheets or built manual workflows. The researchers you fund are each building software and computational infrastructure as most of their work now requires analyzing large amounts of multimodal data with scalable cloud compute. They are each spending your dollars on rebuilding computational infrastructure.
How the Science Cloud can Help
The Manifold Science Cloud Rare Disease software suite is purpose-built software that provides end-to-end integrated workflows and data management to help rare disease organizational leaders:
The applications and underlying platform are designed to:
- Simplify operations
- Engage patients
- Manage bio-specimens
- Support scientists in collaborating rapidly to increase research impact.
The applications and underlying platform are designed to:
- Streamline manual workflows by bringing together the full end-to-end processes of your team, freeing up team member time for higher value tasks such as engaging with participants and collaborating with researchers.
- Optimize the usability of your data and metadata by making it findable, accessible, and interoperable.
- Reduce time and effort required to combine data from public and study-generated sources, analyze it, and iterate on novel research questions.
- Eliminate housekeeping tasks such as bookkeeping multiple versions of data, applying common algorithms to preprocess data, and dynamically scaling computational resources to support data management, analytics, and research. These capabilities are all available out of the box with simple configuration to control this functionality.
With the power of the patient community behind you, your team will be able to go faster in finding therapies and diagnostics and get them into trials and ultimately to patients.
Learn more about how the Science Cloud can help your rare disease organization accelerate patient impact and simplify internal operations.
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